Hypoxic-ischaemic encephalopathy following sepsis related to abdominal surgical procedure; CAMTA1 mutation progressive cerebral palsy
AI-generated summary
BCT was a 2-year-old Aboriginal child with complex needs from a genetic disorder (CAMTA1 mutation) who died from hypoxic-ischaemic encephalopathy following sepsis related to bowel perforation after a percutaneous endoscopic gastrojejunostomy (PEG-J) procedure. Critical failures included: delay in recognising bowel perforation as the cause of clinical deterioration due to cognitive bias; failure to communicate procedural difficulty from interventional radiology to the treating team; lack of documentation of specialist advice not to use the migrated tube; delayed recognition of IV access loss and hypoglycaemia; inadequate escalation to senior staff overnight despite MET calls; and ineffective communication between PICU and surgical teams. Earlier recognition of perforation and appropriate escalation could potentially have changed the outcome. The hospital implemented extensive systemic improvements including cognitive bias training, standardised procedural reporting templates, enhanced escalation procedures, expanded PICU outreach services, and revised consent processes for children under court orders.
AI-generated summary and tagging — may contain inaccuracies; refer to original finding for legal purposes. Report an inaccuracy.
percutaneous endoscopic gastrojejunostomy (PEG-J) conversionexploratory laparotomyintubationintravenous catheter insertioncentral line insertionchest and abdominal X-rayabdominal ultrasoundCT scanelectroencephalogrammagnetic resonance imaginglumbar puncture
Contributing factors
failure to recognise and communicate procedural difficulty
cognitive bias preventing consideration of bowel perforation as cause of deterioration
lack of standardised procedural reporting template
absence of routine post-procedure handover from interventional radiology
failure to document specialist advice not to use migrated PEG-J tube
continued use of migrated tube for feeds and fluids
delayed recognition of IV access loss
delayed recognition of hypoglycaemia
inadequate escalation to senior medical staff overnight
non-adherence to MET call procedures
poorly defined referral pathways overnight
inadequate overnight MET call model for paediatric patients
competing and excessive workload demands on nursing and junior medical staff
ineffective communication between PICU and surgical teams
delay in escalation to surgical consultant
inadequate documentation of consent process for initial procedure
Coroner's recommendations
Monash Health to provide a clinical space with relevant support staff for Interventional Radiology to review patients and gain informed consent before any procedures
Monash Health to provide Interventional Radiology a stand-alone bedcard with associated staff to facilitate all hours, in-house, and ward-based care
Develop and implement a learning module on Cognitive Bias for clinical staff
Continue progression of cognitive bias action plan with targeted training module
Develop standardised template for procedural reporting capturing difficulties and adverse events (implemented)
Implement verbal handover by radiology team to treating team when adverse events occur (implemented)
Require specialist teams to document both in-person and phone advice in the electronic medical record (implemented)
Review overnight nursing model of care for children's program
Review and update escalation to consultant procedures particularly overnight and in context of MET calls (implemented)
Clarify role of PICU clinical lead in MET calls (implemented)
Expand PICU Outreach to 24-hour service (implemented)
Ensure all MET calls are escalated to Consultant (implemented)
Implement automatic escalation to consultant for any delay in care (implemented)
Roster additional resident overnight to reduce junior doctor workload (implemented)
Update surgical handbook to align with paediatric escalation to consultant procedure (implemented)
Review and update consent to medical treatment procedure to include consents in setting of Children's Court Orders (implemented)
Review and implement governance process for Gastrostomy/Jejunostomies inserted by Interventional Radiology and establish database of complications (in progress, extended to early 2024)
Review and update Gastrostomy/Jejunostomy procedures to ensure adequate paediatric coverage (implemented)
Develop pre-procedure assessment and consent process
Develop post-procedure care and review process
Program to ensure learnings are shared with relevant employees (implemented)
Work with patient experience officer to complete open disclosure
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