Coronial
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Inquest into the Death of Pamella Leslie REES

Deceased

Pamella Leslie REES

Demographics

63y, female

Coroner

Coroner Linton

Date of death

2014-06-30

Finding date

2018-09-21

Cause of death

disseminated metastatic carcinoma of unknown primary in a woman with multiple sclerosis

AI-generated summary

Pamella Rees, a 63-year-old woman with longstanding multiple sclerosis, died on 30 June 2014 from disseminated metastatic carcinoma of unknown primary. Her cancer went undiagnosed despite regular GP contact. In her final weeks, she refused external care services despite significant needs, preferring sole reliance on her untrained carer and friend Graham Hall. Her GP did not discuss palliative care or end-of-life planning, despite progressive disability. Weight loss and breathlessness were attributed to known conditions. In her final days, Ms Rees stopped eating and drinking. Mr Hall did not immediately seek medical help, delaying ambulance response by several hours. By the time paramedics arrived, she had been dead for hours. The coroner found her care arrangements, while well-intentioned, resulted in an undignified death that could have been improved through earlier palliative care referral, GP home visits, and discussion of care options—though the cancer diagnosis would have required more active investigation.

AI-generated summary and tagging — may contain inaccuracies; refer to original finding for legal purposes. Report an inaccuracy.

Specialties

general practiceneurologypalliative careparamedicine

Error types

diagnosticcommunicationdelay

Drugs involved

codeinemorphinecarbamazepineparacetamolinterferonpregabalincarbamazepine

Clinical conditions

multiple sclerosismetastatic carcinoma of unknown primaryemphysematrigeminal neuralgiaosteoarthritisincontinenceanogenital skin infectioncachexiaweight loss

Contributing factors

  • undiagnosed metastatic cancer with unknown primary
  • undiagnosed severe emphysema
  • severe trigeminal neuralgia causing dysphagia and pain
  • failure to initiate palliative care discussion
  • refusal of available community services despite significant care needs
  • untrained carer without nursing experience
  • carer fatigue and exhaustion
  • delayed medical help in final hours
  • patient reluctance to accept external assistance
  • weight loss and deterioration not investigated as potential malignancy

Coroner's recommendations

  1. Highlight availability of community services (Silver Chain, MSWA) to patients and carers in similar situations, emphasising low or no cost
  2. Encourage general practitioners to discuss palliative care and end-of-life options with patients who have progressive, ultimately terminal illnesses
  3. GPs should assess and monitor carer coping and burden, particularly in cases of high-need patients
  4. Encourage more frequent GP home visits, particularly for patients with advanced disability or complex needs
  5. GP education on recognising carer fatigue and vulnerability of palliative care patients
  6. Services such as Silver Chain and MSWA should continue attempts to engage patients and carers who initially decline assistance, with particular attention to crisis situations
Full text

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