A 5-year-old girl with severe cerebral palsy (GMFCS level 5) and intractable epilepsy died at home, likely from a seizure. She had multiple medical complexities including microcephaly, developmental delay, unsafe swallow managed by feeding tube, and severe spasticity requiring total care dependency. The coroner found the care provided by her maternal grandmother, supported by the Department for Child Protection and allied services, was exceptional and optimal. Death was consistent with her known conditions and classified as natural causes. The case highlights the critical importance of individualised care planning for severely disabled children, adequate respite support for primary carers, and coordination of multi-disciplinary services including specialised paediatrics, allied health, and disability services. Early palliative care discussions and seizure management optimisation remained relevant considerations.
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