Coronial
VIChospital

Finding into death of Andrew William Barr

Deceased

Andrew William Barr

Demographics

54y, male

Coroner

Deputy State Coroner Paresa Spanos

Date of death

2021-10-17

Finding date

2025-08-21

Cause of death

Complications of pelvic and spinal fractures sustained in a fall in man with Downs syndrome

AI-generated summary

Andrew William Barr, a 54-year-old man with Down syndrome and Alzheimer's dementia, died from complications of pelvic and spinal fractures sustained in a fall. Following his mother's death in January 2021 and his February fall, Mr Barr experienced a prolonged eight-month hospital admission complicated by seizures, aspiration pneumonia, weight loss, and functional decline. While medical management was deemed reasonable by coronial review, the case highlights critical systemic failures: absence of a formal medical treatment decision-maker (MTDM) despite his cognitive impairment, lack of advance care planning, delayed guardianship appointment, poor communication with his primary carers at Burke and Beyond, and complex coordination failures between Eastern Health, NDIS, and State Trustees. The coroner emphasised that a guardian with medical decision-making authority could potentially have been appointed before his death, and that advance care planning—particularly while his mother was alive—was essential but did not occur.

AI-generated summary and tagging — may contain inaccuracies; refer to original finding for legal purposes. Report an inaccuracy.

Specialties

orthopaedic surgerypalliative careneurologygeriatric medicinedisability medicine

Error types

communicationsystemdelay

Drugs involved

anti-epileptic medicationantibiotics

Clinical conditions

Down syndromeAlzheimer's dementiapelvic fracturesspinal fracturesseizuresaspiration pneumoniadysphagiadeliriummuscle wasting

Procedures

CT scanningX-ray imaging

Contributing factors

  • Comminuted sacral fracture with bilateral alar involvement and S1/2 bodies fracture
  • Right L5 transverse process fracture
  • Prolonged immobility and non-weight bearing status leading to deconditioning and muscle wasting
  • Recurrent aspiration pneumonia
  • New onset seizures related to Alzheimer's dementia
  • Alzheimer's dementia
  • Cognitive impairment from Down syndrome
  • Absence of formal medical treatment decision-maker
  • Delayed guardianship appointment
  • Poor communication between hospital staff and primary carers (Burke and Beyond)
  • Lack of advance care planning
  • Multiple transfers between acute and subacute settings
  • Complex coordination between multiple stakeholders (Eastern Health, NDIS, State Trustees)

Coroner's recommendations

  1. Advance care planning conversations should be part of routine quality care for persons with disability, ideally occurring while family members or primary carers are able to participate
  2. Families and carers of persons with disability should be informed of the need to make formal legal arrangements for medical treatment decision-making and substitute decision-makers before the primary caregiver becomes unable to continue in that role
  3. Healthcare providers and disability advocacy services should proactively inform families about options including advance care directives, appointment of medical treatment decision-makers, and guardianship applications
  4. Better coordination and communication pathways should be established between hospital services, disability support services, NDIS, and state-based financial trustees to facilitate timely discharge planning and continuity of care
  5. Hospital staff should receive training in appropriate communication and care practices for patients with intellectual and developmental disabilities
Full text

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