Queenie Michaels, an 11-year-old Aboriginal girl with cytomegalovirus embryopathy and severe physical and cognitive disabilities, died from pneumonia at home while in government care. She had been fostered by Mr and Mrs Bevan since age 21 months, receiving exceptional care including medical management of multiple complications (epilepsy, aspiration risk, spinal deformity, recurrent infections). By 2001, her condition deteriorated significantly with progressive respiratory compromise and spinal deformity. After determining she was too medically compromised for spinal fusion surgery, a decision was made for palliative rather than aggressive treatment. She received excellent end-of-life care at home with daily medical support from her paediatrician. The coroner found no clinical failures—care was exemplary throughout her life, with appropriate escalation decisions and family-centred management of her terminal illness.
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Specialties
paediatricsneurologypalliative carerespiratory medicine
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