1 result for “severe dystonic quadriplegic cerebral palsy”
Inquest into the death of Madeleine Duffy
18y · Female·asphyxiation and respiratory failure on a background of severe dystonic quadriplegia
Madeline Duffy, 18 years old with severe dystonic quadriplegic cerebral palsy, died from asphyxiation and respiratory failure while in respite care. She was positioned on her side in bed with pillows, contrary to her usual back-lying sleeping position, and was not checked for at least 1.5 hours after 6-6:30am despite normally waking around 7-7:30am. When found at 8:15am, her face was pressed against a pillow wedged against the bed rail. The coroner found the critical clinical lesson was the failure to conduct regular morning checks, which might have detected her distress or compromised state and enabled life-saving intervention. Additionally, documentation gaps existed regarding her gastronomy feeding regime (receiving 2 feeds instead of prescribed 4). The case highlights the critical importance of regular monitoring of non-communicative, immobile patients with severe movement disorders who cannot self-rescue from dangerous positions, and maintaining accurate, up-to-date care documentation in residential settings.
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