Coronial
WAhome

Inquest into the Death of Child AC

Deceased

Child AC

Demographics

8y, female

Coroner

Coroner Linton

Date of death

2017-08-10

Finding date

2019-12-19

Cause of death

renal failure due to focal segmental glomerulosclerosis

AI-generated summary

A child with complex neurodevelopmental conditions (cerebral palsy/Rett Syndrome) and focal segmental glomerulosclerosis developed progressive renal failure and died at home on palliative care. The coroner found the medical care, departmental supervision, and foster placement to be of a very high standard. The child received appropriate specialist multidisciplinary treatment until active intervention became inappropriate, then received comfort-focused palliative care. A minor concern was raised about communication from departmental case workers to the family regarding critical health information, which was sometimes delayed or conveyed by text message. The coroner commended the Department's response through new child protection learning pathways and the development of a charter of rights for families.

AI-generated summary and tagging — may contain inaccuracies; refer to original finding for legal purposes. Report an inaccuracy.

Specialties

paediatricsneurologynephrologypalliative care

Clinical conditions

focal segmental glomerulosclerosisnephrotic syndromerenal failurecerebral palsyRett Syndromedevelopmental delayhypotonia

Contributing factors

  • progressive focal segmental glomerulosclerosis
  • steroid-resistant nephrotic syndrome
  • complex neurodevelopmental impairment
  • underlying cerebral palsy/Rett Syndrome

Coroner's recommendations

  1. Department of Communities to continue implementing new Child Protection Learning Pathway including engagement with families and carers
  2. Progress towards final publication of Charter of Rights for parents and families involved with statutory child protection in Western Australia
  3. Continued focus on communication protocols between departmental case workers and families regarding critical health information
  4. Ensure all staff awareness that deaths of children in state care are reportable deaths requiring notification to the Coroner
Full text

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