renal failure due to focal segmental glomerulosclerosis
AI-generated summary
A child with complex neurodevelopmental conditions (cerebral palsy/Rett Syndrome) and focal segmental glomerulosclerosis developed progressive renal failure and died at home on palliative care. The coroner found the medical care, departmental supervision, and foster placement to be of a very high standard. The child received appropriate specialist multidisciplinary treatment until active intervention became inappropriate, then received comfort-focused palliative care. A minor concern was raised about communication from departmental case workers to the family regarding critical health information, which was sometimes delayed or conveyed by text message. The coroner commended the Department's response through new child protection learning pathways and the development of a charter of rights for families.
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