Seizure Disorder in association with Long Standing Hypoxic Ischaemic Encephalopathy (known severe cerebral palsy)
AI-generated summary
MKP was a 15-year-old girl with severe cerebral palsy (GMFCS level 5) and long-standing hypoxic-ischaemic encephalopathy who died from a seizure disorder in her foster home on 26 December 2011. She had progressive respiratory compromise with obstructive sleep apnoea and desaturations noted in the months before death. Her paediatrician had identified the need for a multidisciplinary meeting to discuss emergency management plans for her respiratory impairment, but this meeting had not been finalised by the time of her death. The coroner found no deficiency in her care by the foster family or Department, noting the Murphys provided exceptional, devoted care. The clinical lesson is that in children with severe neurological impairment and progressive respiratory dysfunction, timely formalisation of advance care planning and emergency protocols is essential, even when excellent day-to-day care is being provided.
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