Finding into death of Ivy McGowan
Deceased
Ivy McGowan
Demographics
28y, female
Date of death
2023-10-05
Finding date
2025-01-08
Cause of death
Cerebral x-linked adrenoleukodystrophy
AI-generated summary
Ivy McGowan, a 28-year-old NDIS participant with cerebral x-linked adrenoleukodystrophy, died at home on 5 October 2023 from natural causes. She had experienced progressive deterioration from late 2022, with increasing neuropathic pain, cognitive decline, hallucinations, and visual loss. Her care involved palliative services, medication trials including fentanyl patches and quetiapine, and an advanced care plan updated in January 2023. By early October 2023, she transitioned to palliative care via syringe driver in accordance with her advance care directive. The coroner found no want of clinical management or care by her SIL provider that caused or contributed to her death. This was a natural death in a vulnerable person receiving specialist disability accommodation.
AI-generated summary and tagging — may contain inaccuracies; refer to original finding for legal purposes.
Specialties
Contributing factors
- progressive neurological deterioration
- neuropathic pain
- cognitive decline
- hallucinations
- visual loss
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