Yvonne Dekkers, a 53-year-old woman with Down syndrome, advanced dementia, congestive cardiac failure, and severe dysphagia, died in hospital from unascertained natural causes. She had experienced progressive deterioration including seizures, aspiration incidents, and reduced conscious state. Clinical lessons include the critical importance of early end-of-life care planning for patients with known life-limiting conditions like dementia and cardiac failure. The Disability Services Commissioner found that despite Yvonne being diagnosed with two life-limiting conditions, no end-of-life care plan was developed, even though her treating clinicians had discussed palliative approaches. Comprehensive advance care planning, developed ideally in 2019 when her decline became evident, could have enabled a more person-centred, proactive approach to supporting her in the final phase of life. The case highlights the need for coordinated planning between disability services, guardians, and medical teams when caring for vulnerable populations with progressive conditions.
AI-generated summary and tagging — may contain inaccuracies; refer to original finding for legal purposes. Report an inaccuracy.
Down syndromeAlzheimer's dementiacongestive cardiac failurecongenital heart diseasesevere dysphagiaseizuresaspirationintellectual disability
Contributing factors
advanced Alzheimer's dementia
congestive cardiac failure
severe dysphagia and aspiration risk
absence of end-of-life care plan despite life-limiting conditions
lack of proactive advance care planning
reduced conscious state and deteriorating health
Coroner's recommendations
Home@Scope to identify any residents at 3 Prospect Street, Glenroy who may have a life-limiting condition, and ensure they are provided with suitable end-of-life care planning
End-of-life care plans should be developed by the resident and/or their advocate/guardian/decision maker and should involve the resident's usual caregivers
End-of-life care planning should consider cultural, spiritual and psychosocial needs as well as physical needs, and should be person-centred, focusing on quality of the last phase of life
This page reproduces or summarises information from publicly available findings published by Australian coroners' courts. Coronial is an independent educational resource and is not affiliated with, endorsed by, or acting on behalf of any coronial court or government body.
Content may be incomplete, reformatted, or summarised. Some material may have been redacted or restricted by court order or privacy requirements. Always refer to the original court publication for the authoritative record.
Copyright in original materials remains with the relevant government jurisdiction. AI-generated summaries and tagging are for educational purposes only, may contain inaccuracies, and must not be treated as legal documents. We welcome feedback for correction — report an inaccuracy here.