Coronial
VICaged care

Finding into death of Diane Maree Pearse

Deceased

Diane Maree Pearse

Demographics

51y, female

Date of death

2020-08-03

Finding date

2022-01-12

Cause of death

Status epilepticus on a background of Lennox Gastaut syndrome and cerebral palsy

AI-generated summary

Diane Maree Pearse, a 51-year-old woman with Lennox Gastaut syndrome and severe cerebral palsy, died from status epilepticus after prolonged deterioration. She had progressive dysphagia and recurrent seizures despite multiple anti-epileptic medications. A PEG tube was deemed too high-risk given her severe scoliosis and anatomical distortion. Palliative care was appropriately initiated with an advance care directive in place. Clinical management focused on symptom control rather than invasive interventions, consistent with her wishes. The coroner found the care provided was appropriate throughout her life, with no evidence of inadequate clinical management or personal care. This case demonstrates appropriate end-of-life decision-making in a complex patient with limited safe intervention options.

AI-generated summary and tagging — may contain inaccuracies; refer to original finding for legal purposes.

Contributing factors

  • severe progressive dysphagia
  • worsening seizure activity despite multiple anti-epileptic medications
  • aspiration pneumonia
  • severe scoliosis with distorted anatomy precluding safe PEG insertion
  • paroxysmal hypothermia
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